How to get an official diagnosis

Why get an official diagnosis

by Leslie Burby

There are many benefits to getting an official diagnosis, which many people don’t realize.

How To Get An Official Diagnosis

With adults, an official diagnosis is essential if you intend to claim benefits. Supplemental social security income or disability insurance both require an official diagnosis. Here are some tips for people in the UK on how to go about claiming disability allowance

As well as benefits, adults with Autism are also entitled to disability rights. This enables them the right to disclose and request accommodations at their place of work.

For toddlers and children, the earlier they are diagnosed the sooner services can be provided.  Occupational Therapy and Applied Behavioral Analysis are just some of the many useful resources out there for kids that can help them.

How to get officially diagnosed with Aspergers

It wasn’t until 1994 that Asperger’s could officially be diagnosed.  Usually, the best starting point in the process of diagnosis will be your GP (Doctor). Depending on your country of residence, they will then refer you to one of the following:

  1. Neuropsychologist (Ph.D.)
  2. Psychiatrist (MD)
  3. A social worker with AS experience and an MSW degree
  4. A psychologist with AS experience and a Masters degree
  5. Scientific Study being done at a university


If your GP is not willing to refer you directly you may also want to consider going direct to the specialist.

In The US

For help in your state click this link

Also, you can call your insurance provider under behavioral health needs.

In the UK

You can check out this link to find a Neuropsychologist or psychiatrist in your area  –


Getting a free diagnosis

We have observed from feedback from people who took the AQ Test that GP’s are not always willing to provide a free diagnosis. We wanted to offer a few alternatives that you may find helpful.

There are many scientific studies being done at various colleges or medical centers about Asperger’s.  Many of the studies will even pay you for your time and you get free MRI and PET scans.  You have the right to request the findings once the study is done.  There is a list at the Global and Regional Asperger Syndrome Partnership (GRASP) site, which is in the US.  Click the “Help &Resources” tab and then scroll down to the Diagnostics sources link.  There are a few going on in the state of New York.

If you have already taken the AQ test on our website, you may want to check out a number of similar free online tests:

Broad Autism Phenotype Test – This test will measure the mild autistic traits that are present in the person taking the test

Aspie Quiz  – This is a slight variation of the AQ Test which will compare the Autistic traits against Neuro Typical (non-autistic) traits.

Mind in the Eyes Test – People with ASD often do not interpret facial expressions easily, this test is designed to evaluate your capacity to read facial expressions. – Putting the Public Back in Public Health


Before the appointment with your GP


Unfortunately, many doctors are still not knowledgeable or up-to-date with Asperger’s Syndrome.  So do the homework for them.  When you go to speak to your doctor, bring a list of your concerns with you.  This will help the doctor and save everyone time.  You can also print out a list of Asperger’s characteristics in order for the doctor to compare your traits to the characteristics list.  This way if your GP is not well-informed, you can be helping educate him, which may help him refer other patients in the future.

(If the child is a resident of the USA and is under the age of three then call or email  Evaluations done before the child’s third birthday are FREE. Do not delay!  Trust your gut instinct and get services for your child as soon as possible. It really does help.)


The testing process


Most processes use the DSM IV criteria for diagnosing Autism and Aspergers Syndrome

Children are usually tested using the M-CHAT (Modified Checklist for Autism in Toddlers).  It consists of interviewing parents and evaluating the child. Parents should be prepared for paperwork and checklists.  They will ask when your child achieved milestones (ie. How old was your child when they started walking?)

For adults, questions of your childhood behaviors and your current behavior will be taken into account.  You will be asked questions and might need to consult your parents or siblings about your childhood.

official Diagnosis

Dealing with the diagnosis


Everybody is different when it comes to responding to the diagnosis that they have Aspergers or Autism.

For some, it is a relief because it helps you understand why you are the way you are. You have a reference point and you can understand that there are many people around the world with the same condition.

But for many people, accepting the diagnosis is not easy; it can bring memories from the past about occasions when the symptoms were most present. Perhaps from social events, childhood or school.

It’s easy to think of ourselves as different and inferior. We don’t feel good enough and sometimes we suffer from low self esteem.

One of the most important things to remember during the period following diagnosis, is that Aspergers can be a gift as well as a curse. Yes its true, sometimes we struggle with life and social skills that are easy for many Neurotypical (NT) individuals. However people with Aspergers Syndrome have many different abilities and qualities. The ability to see and understand the world in different ways with a different perception can add so many gifts to the world.

If you haven’t seen the movie about Temple Grandins’ struggle with autism and her subsequent achievements in life, we recommend you do. Not only did Temple find a way to overcome the Emotional distress, but she also gained a PHD in animal science and became an internationally recognized speaker in the Autistic community. Temple is truly an example to us all.

Without the qualities of Asperger’s Syndrome, we wouldn’t have the pioneering theory of relativity that was developed by Albert Einstein, or the widespread adoption of the Windows operating system when Bill Gates created Microsoft. It’s important to find your contribution to the world, however big or small.

Leslie Burby

    Leslie Burby

    Leslie Burby is the former Editor-in-Chief of Autism Parenting Magazine and a public speaker on autism related issues. She is the author of three autism related books: Emotional Mastery for Adult's with Autism (2013); Early Signs of Autism in Toddlers, Infants and Babies (2014); and the children's book Grace Figures Out School (2014).