Valuable Ways to Maximize Your Health Insurance with ASD

Anyone who’s ever filed a health insurance claim or received a medical bill knows how difficult and frustrating the payment process can be. Now, try doing it for patients diagnosed with autism.

Roughly, 1 in 68 American children has been diagnosed on the spectrum of autism (ASD) and, with that, comes an array of special challenges regarding proper insurance reimbursement. The Centers for Disease Control and Prevention (CDC) estimates “it costs $17,000 more per year to care for a child with ASD, compared to a child without autism. Extra costs include health care, education, ASD-related therapy, family-coordinated services, and caregiver time. For a child with more severe ASD, costs increase to over $21,000 more per year.” And those are the baseline numbers.

Valuable Ways to Maximize Your Health Insurance with ASD

A Texas mother shared her story with Autism Speaks as both of her children needed rigorous treatment at a cost of nearly $60,000 each. Luckily, Texas is one of the more autism-friendly states, allowing for “child-only” insurance through the Affordable Care Act (ACA) exchange system. Upon signing up in 2014, the family’s out-of-pocket expenses and monthly premiums dramatically decreased. In the mother’s words, “it has been a godsend.” All autistic caring parents understand how critical regular treatment is to the proper development of their child.

If this family lived in Florida, they’d only be eligible to receive up to $36,000 per child per year, with a $200,000 lifetime cap on coverage. Do the math—it’s not pretty. In Tennessee, autism is considered a “neurological disorder,” and as such, benefits do not fully address many of the needs specific to autism treatment.

Here are some tips for helping you filter through this often challenging process:

1. Know your rights—research the benefits allowable in the state you live

Literally, every state has its own rules regarding autism coverage including the age range for coverage. Georgia only provides coverage up to age six; where other states allow up to age 18. The National Council of State Legislatures provides a comprehensive state-by-state breakdown of all health insurance mandates and regulations for autism.  Here’s an important link:

Why such disparity between states? For starters, despite the implementation of the ACA, which guarantees certain elements in all healthcare plans, Congress offered states the option to set their own benchmarks within the federal minimums. This was the necessary “compromise” to get the ACA passed. Most people think that President Obama and Democrats “jammed the bill through.” That is not accurate. The majority of Congressional Democrats favor far stricter federal standards. So, if you think the ACA is the real problem, think again—prior to the ACA, “autism” could be identified as a “pre-existing condition” and thereby allowing all insurance companies to deny any coverage, at any price, in any state.

2. If you want the current ACA to work better for you, make some calls

Start by calling your governor and your state legislature and demand they offer better coverage for autism. In addition, remind your congressman and senators that coverage under the ACA needs to be strengthened on the national level, not replaced or further allowed to be weakened by individual states. Any changes that lessen current mandates could be devastating to autism coverage.

Given the high cost of healthcare today and complexity of coverage, it is critical that claims be filled out and filed correctly to ensure all eligible payments. Due to the nature of autism treatment, the proper filing is even more essential than with other medical treatments.

3. Double-check the proper codes

If a claim is denied, always check with the service provider that the proper codes and diagnosis was marked. Never pay a bill until you identify why there’s a bill in the first place and you confirm with your provider AND insurance company the reasons for the denial. Sometimes, the denial is justified—more often, someone made an error with the paperwork. To further protect yourself and to help maximize reimbursement, you might want to consider a professional medical bill management and claims filing service. They not only know what to look for in the event of errors and processing, they know what questions to ask and how to make the required adjustments. Even if your provider files your claims, you need to be in control in managing the process regarding reimbursement and paying bills.

4. Follow up on your bills

If you receive a bill, DO NOT expect the doctor or service provider to follow-up with your insurance company on denied or rejected claims. This is YOUR responsibility.

5. ALWAYS ask the doctor’s office to file your claims if they accept assignment

If your doctor accepts “assignment,” it means that he/she agrees to file the claim and “accepts” as payment in full the amount the insurance company approves. Providers cannot balance bill you for the difference between their charges and the insurance “approved” amounts.

In most cases, the insurance company will pay providers directly when they participate with the insurance program. If the provider accepts assignment or participates with your insurance program, your only obligation usually is the co-payment, as stated in the policy. Many providers will ask for this co-pay at the time of your visit. Don’t be afraid to ask them if they can bill you for the co-pay AFTER they file the claim and have been paid by the insurance company.

6. Understand your co-pay

Many people pay the wrong co-pay. For example, they pay 20% of the “charged amount” instead of 20% of the “approved amount,” and consequently, overpay and never receive a refund. Providers often will hold onto this extra money and use it as a “credit” toward your future balance. In many cases, they won’t even tell you about it.

If you carry more than one insurance policy, do not assume the provider will file the additional insurance company.

7. Provide all the information the insurance company needs

If you file the claim, be certain to give the insurance company all the information it needs AND be sure to make copies. Incorrect or missing information will only cause a delay in processing the claim. If you need to submit an itemized statement, be certain the following information is included:

  • Diagnosis
  • Description of service
  • Charge for each service
  • Date of each service
  • Location of each service
  • Name of the provider (doctor, hospital) who actually treated you
  • All appropriate insurance numbers

8. File your insurance claims as soon as possible

No one wants bills to pile up. Many people think it’s easier to file their claims all at once, say at the end of the year. This is wrong. Haste makes waste and may also cost you money and coverage. Timely submission of claims is critical in receiving reimbursement. Even if your provider agrees to file the initial claim, you should be sure that it is filed within the filing time limits imposed by the insurance company. Claims filed too late could result in a bill to you from your provider for services that should have previously been paid by your insurance.

9. Wait for the Explanation of Benefits

Never pay a bill until you receive the Explanation of Benefits form from your insurance company, which indicates who and exactly how much they paid. Providers routinely send bills out prematurely. Many patients pay them before the insurance company pays. As a result, duplicate payments often occur. Refunds that are rightfully due to the patient may never get returned.

When you do pay a bill, keep records by date of payment and check number. This accounting is necessary when verification of payment is required. Often, a lack of knowledge regarding benefits leads to billing and paying for services that should be reimbursed or simply, written off.  Check your policy frequently to be certain of the covered benefits.

10. Always appeal rejected claims regardless of the reason given to you

In addition, appeal all claims that you believe were not paid at the appropriate level.

An insurance company may say that the provider’s charge exceeds the “allowed amount” (the usual and customary charge), but this may not be the case.  A Government Accounting Office (GAO) study several years ago indicated that, of the millions of dollars of rejected Medicare claims annually, only about 2 percent are ever appealed. However, of those 2 percent, approximately 75 percent are overturned in favor of the patient! APPEAL-APPEAL-APPEAL.

Above all, don’t be intimidated by the system. If you are persistent, aggressive and assertive, you will be able to maximize your reimbursement, minimize your stress, and get peace of mind. Remember, the insurance company works for YOU! After all, you’re paying for it!

Phone: 1-800-400-4066

This article was featured in Issue 69 – The Gift of Calm This Season


    Harvey Matoren

    Harvey Matoren, MPH, CCAP is a healthcare professional with 50+ years in the industry. He's a former senior vice president at Blue Cross Blue Shield of Florida and President of its HMO subsidiary, Health Options. Throughout his career, Harvey developed insurance packages and plans for groups and employers, while continuing to fight for patients' rights and benefits. In 1989, he and his wife (a registered nurse and health care administrator) established Claims Security of America, an independent Jacksonville, FL based business that manages, files and tracks medical claims for a nationwide roster of clients. Harvey holds a BS degree in Psychology from CUNY, a Master’s degree in Public Health from UCLA and completed an advanced management program at the Harvard Business School. He’s licensed and bonded as a “Public Health Adjuster” by the Florida Department of Insurance. And he’s one of the first members certified by the National Association of Claims Assistance Professionals. Founding member of its National Advisory Board and Certification Committee and successor organization, the Alliance of Claims Assistance Professionals, Inc. (ACAP). For more visit and email at

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